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Announcing the 2012 Family Day!

We are pleased to inform you that the next family day will take place on the weekend of 24th March 2012. The format will be slightly different to previous occasions. As you may know we have been forging ties with the Thalidomide Society during the last few years; Sue is a trustee on their Board and we have been privileged to welcome thalidomiders as guests at previous TAR Family Weekends. There is a lot to learn from them and encouragement to take from them as people who have a lifetime of experience dealing with a disability which has a lot of similarities to TAR.

This year the Thalidomiders will not be having their usual formal AGM weekend as they are planning a big fiftieth anniversary celebration in London. As they are having a more informal event it seemed an ideal opportunity to liaise with them for our family day. So, we are holding a family weekend shared with the Thalidomide Society at the Hilton Hotel, Coventry. The idea is that we will have some time doing our own thing as the TAR Syndrome Group during the afternoon but join up with the thalidomiders for social time in the evening.

We will start after lunch, 2pm on Saturday 24th March and close at 11am on the Sunday. We will not be having a formal evening meal but there will be a buffet with social activities/music afterwards. We are hoping to invite a geneticist to update the group on where they are up to in their understanding of TAR Syndrome but this cannot be guaranteed at this stage. If anyone has ideas about activities in the afternoon please let us know and we will do our best to oblige. There is a swimming pool and leisure facilities available for guests staying at the hotel.

If you would like more information please contact us on Susyedwards@hotmail.co.uk and we will answer your queries / send you information on how to book.

Rooms are going fast so early booking is advisable!!

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